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Celine Dion Explains Why She Finally Went Public With Stiff Person Syndrome Diagnosis: ‘I Could Not Do This Anymore’

June 10, 2024
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Celine Dion Explains Why She Finally Went Public With Stiff Person Syndrome Diagnosis: ‘I Could Not Do This Anymore’
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Celine Dion suspected one thing was fallacious along with her for a a very long time. However it wasn’t till she publicly shared her analysis with the uncommon neurological situation Stiff Individual Syndrome in 2022 that the singer lastly felt like she’d come clear about her well being struggles. Within the newest preview of an upcoming NBC primetime particular wherein Dion discusses her well being points, the Canadian powerhouse vocalist tells The Immediately Present‘s Hoda Kotb that she knew it was time to be extra clear.

“I couldn’t do that anymore,” Dion says of the burden of not telling her followers and the general public the key she was carrying within the first broadcast interview since her analysis. “What would you like me to say? I’ve… what? We didn’t know what was happening,” the singer says. “I didn’t take the time. I ought to have stopped. Take the time to determine it out… my husband as nicely was combating for his personal life. I needed to increase my children. I needed to conceal. I needed to attempt to be a hero. Feeling my physique leaving me, holding onto my very own desires. And the mendacity for me was – the burden was like an excessive amount of.”

Extra pointedly, Dion says, mendacity to the “those that received me the place I’m at this time” was insufferable.

In an earlier preview, Dion described the agonizing ache she’s endured from the uncommon situation, saying it looks like “any individual is strangling you… It’s like any individual is pushing your larynx/pharynx this fashion [raises voice]. It was like speaking like that, and you can not go excessive or decrease. It will get right into a spasm.”

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Dion, 56, informed Kotb that the spasms brought on by the dysfunction have generally gotten to intense that at one level she broke some ribs. The situation could cause uncontrolled muscle spasms that make it laborious to maneuver and it pressured Dion to cancel her 2023 tour after her sister revealed that the singer had “no management” over her muscle tissue. Her difficult highway to managing the illness is the topic of the upcoming documentary I Am: Celine Dion, which can debut on Prime Video on June 25.

The singer additionally tells Kotb that she first started having bother controlling her voice after noticing signs in 2008, saying that originally she thought issues could be “wonderful.” However then the muscle spasms and stiffness in her fingers and ft grew to become extra outstanding and he or she realized one thing severe was taking place with the power, progressive illness that may be managed with remedy.

The complete interview will throughout a one-hour primetime particular on NBC on Tuesday (June 11) at 10 p.m. ET.

Watch Dion on the Immediately Present under.

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